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Health/Disability Related Support Groups | Muscular Dystrophy Association Rhode Island Chapter

931 Jefferson Boulevard, Suite 1005, Warwick, RI 02886

Eligibility
People with Muscular Dystrophy, ALS, and related neuromuscular diseases; their families and caregivers; and professionals in the field.
Hours
Mon-Fri 9:00AM-5:00PM
833-275-6321
Voice·

Resource Center

401-732-1910
Voice·

Main Phone

401-732-2652
Fax·

Fax

Application process
Register with MDA by contacting the Resource Center. Contact Local office to learn about local resources
Fees
No fees
Service area
Statewide
Services: Diagnostic work-up, medical management offered through clinical programs; assistance purchasing wheelchairs or braces; physical/occupational therapy evaluations upon physician's request; summer camp for clients, ages 6-18. Research directed towards cure of neuromuscular disease. Local programs available to foster greater community and professional awareness. Income Source: Telethon; special events; solicitations.
Last assured
03/23/2022
Providing organization
Muscular Dystrophy Association National Office
MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since its inception to accelerate the discovery of therapies and cures. Research MDA has supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top medical institutions. MDA's Resource Center serves the community with one-on-one specialized support, and offers educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families.